CLaD 2.0
Conversations on living and dying: Facilitating advance care planning with older people living with advancing frailty.
Overview
Advance care planning (ACP) enables people nearing the end of life to talk about what matters most to them, including their preferred future care. It is particularly important for older people living with frailty as they are vulnerable to sudden health changes, but this group are rarely engaged with ACP conversations.
The CLaD 2.0 study builds on the Conversations on Living and Dying intervention. Developed by a team of researchers working with older people with frailty, unpaid carers, health and social care professionals, and patient and public involvement (PPI), CLaD supported care professional to facilitate ACP conversations with older people living with frailty.
This study moves the original intervention forward. Working with older people with frailty and those important to them, we will co-produce resources specifically designed to support older people with frailty to engage with ACP. Co-production will happen through a workshop and, to reduce burden on attendees, the research team and PPI representatives will use this data to develop the resources. The resources will then be tested in practice with care staff and older people with frailty and refinements made.
Research question
What educational and preparatory resources are required to support older people living with advancing frailty to engage with ACP?
Aim
To co-produce resources with older people living with advancing frailty to increase ACP engagement.
Resources
This study co-designed two leaflets to support older people living with advancing frailty to talk about and engage with advance care planning. The resources were created based on findings from the original study, a co-production session with unpaid carers and unpaid carer representatives of people living with frailty across London and the South East, and refined with patient and public representatives.
The aim of the resources are to support older people living with frailty, and their unpaid carers, to talk about what matters most to the older person, so that the person can plan their care – both now and in the future.
- Download the leaflet produced for older people themselves (PDF)
- Download the leaflet designed for unpaid carers of older people living with frailty (PDF)
Please do let us know if you have any feedback on these resources by emailing sarah.combes@surrey.ac.uk
Further information
For more information on the CLaD or CLaD 2.0 studies please contact Sarah Combe at sarah.combes@surrey.ac.uk or see below:
- Read about the CLaD intervention
- Read about the importance of living well now and relationships when engaging older people with frailty in advance care planning
- Read about the need for a systemwide approach when implementing advance care planning with community-dwelling frail elders.
Our team
Dr Sarah Combes
Research Fellow
Dr Vanessa Abrahamson
Post-Doctoral Research Fellow (UoK)
Professor Caroline Nicholson
Professor of Palliative Care and Ageing