PRO-FRAIL

Capturing and measuring what matters most to older people with frailty towards the end of life.

Overview

In the coming decades older people with frailty will be one of the main recipients of palliative care. This change will significantly impact how health systems provide end-of-life services. Patient-reported outcome measures (PROMs) and Patient experience measures (PREMs) are increasingly used within healthcare. However, in the context of palliative care have been predominately developed with patients with single disease such as cancer.  It is not clear how well PROMs and PREMs meet the expressed needs of older people with frailty, and their caregivers, or how they are used with this group towards the end of life.

PRO-FRAIL article.pdf

Aim

  • To identify how the needs, experiences, and priorities of those with severe frailty can most effectively be assessed with PROMs and PREMs
  • Co-design a prototype adapted PREM/PROM which addresses the needs and priorities of this group.

PRO-FRAIL film

Please watch our 3-minute video explaining the project below, or for more information contact Faith Howard at f.howard@surrey.ac.uk.

 

Funders

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Our team

Faith Howard

Postgraduate Research Student

Professor Caroline Nicholson

Professor of Palliative Care and Ageing

Dr Jenny Harris

Senior Lecturer in Cancer Care and Health Statistics

Dr Richard Green

Surrey Future Fellow

Dr Joy Ross

Consultant in Palliative Medicine, St Christopher’s