PRO-FRAIL
Capturing and measuring what matters most to older people with frailty towards the end of life.
Overview
In the coming decades older people with frailty will be one of the main recipients of palliative care. This change will significantly impact how health systems provide end-of-life services. Patient-reported outcome measures (PROMs) and Patient experience measures (PREMs) are increasingly used within healthcare. However, in the context of palliative care have been predominately developed with patients with single disease such as cancer. It is not clear how well PROMs and PREMs meet the expressed needs of older people with frailty, and their caregivers, or how they are used with this group towards the end of life.
Aim
- To identify how the needs, experiences, and priorities of those with severe frailty can most effectively be assessed with PROMs and PREMs
- Co-design a prototype adapted PREM/PROM which addresses the needs and priorities of this group.
PRO-FRAIL film
Please watch our 3-minute video explaining the project below, or for more information contact Faith Howard at f.howard@surrey.ac.uk.
Our team
Faith Howard
Postgraduate Research Student
Professor Caroline Nicholson
Professor of Palliative Care and Ageing
Dr Jenny Harris
Senior Lecturer in Cancer Care and Health Statistics
Dr Richard Green
Surrey Future Fellow
Dr Joy Ross
Consultant in Palliative Medicine, St Christopher’s